Dave & Shelby's Music


Tuesday, September 30, 2008

UPDATE ON THE BOSS

I am finally updating the progress of Boston. Sorry it took me so long. WE really appreciate all of you that check the blog all the time to see how he is doing. He is doing well. Today they are going to do and Eco cardiogram. He had a valve that has never closed so they are going to see if it has closed yet. They also found what they think to be a whole between two of the atrium's. So, they are checking on both of those today and we should find out today or Thursday. The doctors love to take their time on the results. It's not like we are holding our breath or anything while we wait... He has a minimal amount of damage to his eyes. WE figure we can do contacts or glasses just fine. He will have those checked sometime in the next few days for a final result. They have finally ruled out that their is anything wrong with the kidneys. At first they thought that he had hydrocephalus ( the urine goes back into the kidneys and causes kidney infections). Then a few days ago his blood pressure was high so they thought that his kidneys were not working. We just crossed both of those off the list yesterday Yeah... He does have what they call chronic lunge disease but we will not know how bad it is for a few years. The doctors don't think it will be to bad. Maybe asthma and we will have to watch him really closely in the winters. He will be really susceptible to a common cold that could get really bad for him. He just passed his hearing test... He is on the lowest setting of oxygen. The doctors say that if lived at a lower elevation he would probably be off. Last but not least the only thing that is keeping him in the hospital unless we get bad results on the heart is feeding. He has to take a 75% feeding from a bottle or from mom. He is just not picking it up. All of the nurses call him the turtle because all he does is sleep. We can not get him to wake up to eat. He has to wake up at least every four hours to eat on his own before he can go home, but no mister turtle loves to be fed through the tube while he sleeps. He is 6lbs 4 oz. He does have acid reflux so I think it hurts to eat. As soon as he gets that down for 48 hours he can come home. We have been working on it for weeks so who knows how long we will be up there. Okay so we covered all of the major organs in the body. I was telling my friend the other day that we only have a few more organs to cross off our list Heart, Lungs, Eyes, Kidneys. She said " so pretty much everything". We are so proud of this little man for being such a fighter and we will take him in any condition...

5 comments:

Amy Jensen said...

He is so special and I can't wait to meet him! I think and pray for you guys still all the time. I am glad to hear he is doing well for the most part and that is amazing that he is almost 6 and 1/2 lbs. What a little fighter. As far as the asthma thing that won't be the worst thing that could happen right?? Easton actually has it really bad, we have the whole inhaler, medication and everything. Hang in there, I miss you and hope you get Boston home soon. We need to get together when things slow down for ya.It sounds like You probably won't be going anywhere in the winter time but we will come visit! Love you all.....

Matt and Jamie said...

We really miss seeing you guys. I can't believe the little boss is hanging in there and doing so well. We love you and think about you all the time.

Elicia said...

He is a cutie! I will pray the little guy starts eating better soon so you can bring him home soon!
BTW, is it hydronephrosis they thought he had? Eli had that in-utero, we found it at about 22 weeks pregnant and were going to have to do surgery when he was born to prevent kidney damage and infections but it, amazingly as bad as they thought it was, had pretty much resolved itself my the time he was born.

Palmer Family said...

Hey Shelby, when my little guy was in the hospital it took him awhile to get the feedings down, it will happen I promise, It gets so frustrating but he will be homoe before you know it. Hang in there!!

Eliza said...

Were so glad to hear he is doing well! We left a present on your door step the other night, I hope you got it. Let us know if we can help out with anything!